Rare Disease Day - Virtual Update

Hello Rhizo Families,

It has been a while since our last virtual update and there has been a lot happening at MLD! We thought what better way to celebrate Rare Disease Day than to hold an update call for families. Once again the call will be a zoom meeting which is scheduled for February 29th, 2024, beginning at 4:30 pm ET.

MLD will be providing some updates on the RCDP program, as well as sharing some information on a project we are working on for the Rhizokids conference this summer. Of course, we will open the floor to answer everyone’s questions. If there is anything you have been wanting to ask MLD about our therapies, the natural history study, or anything else now is your chance.

If you are interested in attending please fill out the form below. We will require an email address and phone number for the zoom invite. The meeting links will be secure, and only those registered will be able to attend. Registration will be open until 5pm ET on February 26th. A meeting invite will be sent out to everyone after that with instructions on how to join.